10 thoughts on “About”

1. Warren February 12, 2014 at 5:18 pm

   Jay, thank you for explaining CF without the jargon and nonsense.

   I saw the article you did for Cracked and started off by not knowing a thing, subsequently I watched your videos on here and now I think I am fully qualified, in nothing really. But I now have a better understanding of CF.

   I’m pretty sure, judging by your upbeat attitude, you don’t want pity or for me to feel sorry for you. I’m not a heartless bastard though and, as much as a non CF suffering person can, I now understand what you go through on a daily basis.

   You may have worked out that I don’t do this often. What I want to say is……..wait for it…….. I think you are funny and have a pretty good outlook, any anger (in your video) is perfectly justified.

   And a side line; you have a great quality to be able to communicate dark humour through writing, it’s not an easy thing to do, but you do it very well indeed.

   Good luck for the future Jay
2. jaygironimi February 12, 2014 at 5:46 pm

   Thanks Warren! Had I written the article at 20, I’m pretty sure it would have just been “CF shit shit shit balls!” It took me years to turn that sentiment into something more palatable, so I’m glad you enjoyed it.
3. Tori February 20, 2014 at 3:21 am

   Hi Jay,

   My name is Tori, and my big sister passed away from CF 15 years ago at age 22. I came to find you via your article on Cracked, which actually managed to make me smile about a subject that usually makes me cry – for that, thank you! Your ability to convey the subject with humor and acceptance is wonderful, and I’ll definitely be popping back from time to time to read your rambles, as well as download your book. I was only 12 when Jen passed, so it’s nice to have something I can read about her (and your, obviously) illness and life that isn’t 65 Roses or its ilk.

   I wish you many long and pain-free years!
4. jaygironimi February 20, 2014 at 7:20 am

   Hi Tori,
   Thank you for the kind words. It really means a lot to me that you were able to get something out of all my rambling. CF has touched so many lives that I feel like it’s only proper that we mock it mercilessly until it runs home crying and leaves everyone alone. I’m just doing my part.

   Thanks again for reading!
5. Heather March 23, 2014 at 3:29 am

   Hey, my two youngest sons have CF. I have 3 boys, 8, 4 1/2, and 18 months. I’m still in a bad place since their diagnosis inJuly 2013. I’m really glad I found your blog, and can’t wait to buy your book! Love your sense of humor and I really needed something to give me a good laugh, thank you! I hope, and know, you’ve got a long life ahead of you!
6. jaygironimi March 24, 2014 at 6:10 pm

   I’m glad you found it too! I hope you enjoy what you read and everything is well with you and your sons.
7. Jocelyn May 1, 2014 at 12:44 am

   You are f*#%ing amazing!!!!
8. jaygironimi May 6, 2014 at 6:03 pm

   Thanks!
9. Patrick Forest December 28, 2014 at 4:25 pm

   Hey Jay just wanted to say thanks for making my Wife laugh her ASS OFF. She also has CF, she is 46 & doing quite well all things considered. You know all the ups & downs. Its great for me as well to see somebody else with a very like minded since of humor on not just CF but life as well. I laughed my ass off at your death metal song. My wife doesn’t care for that kind of music like I do she’s more of a Bon Jovi/ Bob Seager kind of girl. Well any way both my wife & I will be back a lot I’m sure. We look forward to reading your book. Thanks again for the reminder to find humor in the negative. You ROCK.

   Patrick
10. jaygironimi December 29, 2014 at 5:55 am

    Hi Patrick,
    Glad you liked the death metal song! I knew I couldn’t be the only one who though growling about mucus was funny.
    I’m also glad to hear your wife is doing well. I know it’s not easy.

    Let me know what you think of the book when you guys get a chance to read it. I can assure you its the most offensive book about CF ever written.