The first inkling of an idea is intoxicating, filled with the promise that this is going to be the idea that changes everything. At that moment, the goal is right in reach and every door is open; this could lead anywhere. But the cold light of day moves the goal line somewhere over the horizon and forces you to pick a door. That door leads to more doors and you don’t always get to go back the way you came. Doors turn into walls and possibilities die. That’s why so many projects remain unfinished—it’s much easier to deal with what they should be rather than what they could be. The ones that do get finished are often hated for what they’re not, until a little distance proves them to be “fine.” Continue reading
I’m a giant fucking production. At minimum, it takes me 8 pills and one injection to get ready to eat, which means it costs about $70 for me to even think about having dinner. (luckily I have insurance right now, so I’m not paying that directly). If I ever had to pay $70 for a meal, I’d crap myself in protest. Even if I decided not to eat today, it still costs roughly $60 for me to wake up. Sure, I could wake up and not do my pulmozyme, but it’s not worth it. Continue reading
Needles are my spiders. Or snakes. Or coconut crabs (actually, coconut crabs are my coconut crabs). Needles are the thing in life that I don’t like. Everyone has something. So when I spent a Monday afternoon alone in the corner of a Denny’s, shooting up in front of a plate of nachos, I was really proud of myself. Continue reading
This is a video about how CF affects my digestive system, but I’m not going to bullshit you: I wouldn’t be displeased if this video somehow spun off into a sponsorship deal with Denny’s and/or KFC.